{"id":5913,"date":"2022-04-20T10:54:32","date_gmt":"2022-04-20T08:54:32","guid":{"rendered":"https:\/\/fundacioncolumbus.org\/?p=5913"},"modified":"2026-03-31T19:46:43","modified_gmt":"2026-03-31T17:46:43","slug":"la-fundacion-columbus-se-moviliza-para-recaudar-50-000-e-junto-a-varias-empresas-solidarias","status":"publish","type":"post","link":"https:\/\/fundacioncolumbus.org\/en\/la-fundacion-columbus-se-moviliza-para-recaudar-50-000-e-junto-a-varias-empresas-solidarias\/","title":{"rendered":"Nos movilizamos para recaudar 50.000\u20ac junto a varias empresas solidarias."},"content":{"rendered":"<p><strong>Arranca la campa\u00f1a Ucrania X2 que destinar\u00e1 el total de la recaudaci\u00f3n a organizaciones filantr\u00f3picas polacas que acogen a ni\u00f1os refugiados ucranianos con enfermedades raras y que necesitan ayuda urgente.<\/strong><\/p>\n\n<ul>\n<li>La Fundaci\u00f3n Columbus trabaja desde hace a\u00f1os en Polonia facilitando tratamientos de terapia g\u00e9nica a ni\u00f1os y ni\u00f1as con enfermedades raras de todo el mundo.<!-- \/wp:post-content -->\n\n<!-- wp:list --><\/li>\n<li>El primer objetivo de la campa\u00f1a Ucrania X2 es recaudar 50.000 \u20ac para financiar durante tres meses la alimentaci\u00f3n espec\u00edfica que necesitan 18 ni\u00f1os con una enfermedad rara llamada Fenilcetonuria.<!-- \/wp:list -->\n\n<!-- wp:list --><\/li>\n<li>Ucrania X2 consiste en duplicar cada euro recaudado a trav\u00e9s de la aportaci\u00f3n de empresas solidarias. Tambi\u00e9n FEDER, la <a href=\"https:\/\/www.enfermedades-raras.org\/actualidad\/noticias\/respondemos-la-emergencia-humanitaria-en-ucrania-en-coordinacion-con-el-tejido-asociativo-espanol-e-internacional-0\" target=\"_blank\" rel=\"noopener\">Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras<\/a>, ha creado una alianza con la Fundaci\u00f3n Columbus para este proyecto.<\/li>\n<li><a href=\"https:\/\/columbusvp.com\/es\/\" target=\"_blank\" rel=\"noopener\">Columbus Venture Partners<\/a>, <a href=\"https:\/\/viralgenvc.com\" target=\"_blank\" rel=\"noopener\">Viralgen Vector Core<\/a>\u00a0y <a href=\"https:\/\/www.globalomnium.com\/Grupo\/Inicio\/\" target=\"_blank\" rel=\"noopener\">Global Omnium<\/a> se comprometen a duplicar la cantidad recaudada y donarla a la Fundaci\u00f3n Columbus.<\/li>\n<\/ul>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"wp-image-5936 aligncenter\" style=\"font-size: 1rem;\" src=\"https:\/\/fundacioncolumbus.org\/wp-content\/uploads\/2022\/04\/FC_UCRANIAX2-1024x683.png\" alt=\"\" width=\"672\" height=\"447\" \/><\/p>\n<p style=\"text-align: center;\"><span style=\"text-align: center; font-size: 1rem;\">Presentaci\u00f3n de la campa\u00f1a a los miembros de la Fundaci\u00f3n.<\/span><\/p>\n<!-- \/wp:list -->\n<p><!-- wp:paragraph -->La Fundaci\u00f3n Columbus ha activado una campa\u00f1a con el objetivo de recaudar fondos y destinarlos a centenares de ni\u00f1os ucranianos con enfermedades raras que han tenido que suspender sus tratamientos debido a la guerra y que ahora son refugiados en Polonia. La campa\u00f1a Ucrania X2 consiste en el compromiso de duplicar la cantidad recaudada a trav\u00e9s de empresas solidarias que se sumen la campa\u00f1a, como es el caso de Columbus Venture Partner, Viralgen Vector Core y Global Omnium a trav\u00e9s de la Fundaci\u00f3n Aguas de Valencia.<\/p>\n<!-- \/wp:paragraph --><!-- \/wp:paragraph -->\n<p><!-- wp:paragraph -->La Fundaci\u00f3n Columbus tiene una fuerte conexi\u00f3n con Polonia ya que trabaja desde hace varios a\u00f1os con el <a href=\"https:\/\/mapadekalogu.pl\/en\/locations\/szpital-brodnowski\" target=\"_blank\" rel=\"noopener\">Hospital Br\u00f3dno de Varsovia<\/a> y a trav\u00e9s de su CEO polaco Krystof Banquiewicz, ha identificado en Polonia organizaciones locales que conoce de primera mano y sabe con seguridad que est\u00e1n realizando un trabajo de acogida y cuidado de ni\u00f1os y ni\u00f1as ucranianos con enfermedades raras\u00a0y trastornos gen\u00e9ticos. Estas organizaciones son:<\/p>\n<!-- \/wp:paragraph -->\n<p><!-- wp:paragraph --><strong><a href=\"http:\/\/rzadkiechoroby.org\" target=\"_blank\" rel=\"noopener\">1.- Krajowe Forum Orphan<\/a>:<\/strong> ayuda a proporcionar medicamentos y alimentos especiales para los ni\u00f1os refugiados ucranianos en Polonia. Tambi\u00e9n lleva medicamentos a Ucrania para los ni\u00f1os y ni\u00f1as que a\u00fan se encuentran en el pa\u00eds y que no tienen acceso a los medicamentos o los alimentos que necesitan para sus necesidades espec\u00edficas.<\/p>\n<!-- \/wp:paragraph -->\n<p><!-- wp:paragraph --><strong><a href=\"https:\/\/imid.med.pl\/pl\/\" target=\"_blank\" rel=\"noopener\">2.- Instytut Matki i Dziecka<\/a>:\u00a0<\/strong>\u00a0ayuda a los ni\u00f1os con trastornos metab\u00f3licos raros y a sus familias a acceder a la atenci\u00f3n y los alimentos especializados que necesitan mientras son refugiados en Polonia.<\/p>\n<!-- \/wp:paragraph -->\n<p><!-- wp:paragraph --><strong><a href=\"https:\/\/parentproject.org.pl\" target=\"_blank\" rel=\"noopener\">3.- Fundacja Parent Project Muscular Dystrophy<\/a>:<\/strong>\u00a0ayuda a dos ni\u00f1os Nazar, de 10 a\u00f1os, y Sergei, de 8 a\u00f1os, que sufren la enfermedad rara Distrofia Muscular de Duchenne. Necesitan medicamentos y soportes para la movilidad ya que ya no pueden caminar.<\/p>\n<!-- \/wp:paragraph -->\n<p><!-- wp:paragraph --><strong><a href=\"https:\/\/jatez.org.pl\" target=\"_blank\" rel=\"noopener\">4.- Ja Tez<\/a>:<\/strong> ayuda a los ni\u00f1os refugiados ucranianos con s\u00edndrome de Down y a sus familias con vivienda, finanzas, apoyo legal y art\u00edculos para las necesidades diarias.<\/p>\n<!-- \/wp:paragraph -->\n<p><!-- wp:paragraph -->Estas organizaciones filantr\u00f3picas\u00a0polacas\u00a0est\u00e1n desbordadas ante la afluencia de refugiados ucranianos y se encuentran carentes de recursos para hacer frente a una situaci\u00f3n sin precedentes. La Fundaci\u00f3n Columbus est\u00e1 trabajando junto a ellas para garantizar que el tratamiento m\u00e9dico adecuado para los ni\u00f1os y ni\u00f1as con enfermedades raras est\u00e9 disponible de inmediato. En muchos casos, la vida de estos ni\u00f1os depende de la continuidad de estos cuidados. Los fondos recaudados por la campa\u00f1a\u00a0UCRANIA X2\u00a0servir\u00e1n para asegurar que los ni\u00f1os y ni\u00f1as\u00a0bajo el cuidado de estas organizaciones\u00a0tengan los medicamentos, la atenci\u00f3n, la vivienda y sus necesidades de alimentaci\u00f3n especializada cubiertas.<\/p>\n<!-- \/wp:paragraph -->\n<p>&nbsp;<\/p>\n<!-- wp:envira\/envira-gallery {\"galleryId\":5496,\"title\":\"Finaliza con \u00e9xito la campa\u00f1a Dolor y 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