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Charity evening “Marta’s journey” | Niemann-Pick type C
27 September, 2019 @ 9:00 pm - 11:00 pm
Marta is a 4 and a half year old girl with Niemann Pick C. This is a rare neurodegenerative genetic disease with which she was diagnosed in its most severe form being the childhood early onset.
In order to raise funds so as to find a gene therapy cure for Marta and other children like her, we have organised a charitable event. This evening will be the 27th of September at 21:00 in the Ciudad de la Raqueta in Madrid.
The ticket is 40 euros including a cocktail. The master of entertainment and amusement, the Mago More will be present as well as many more surprises, including a solidarity raffle containing fantastic prizes such as: a car for the weekend, breakfasts in hotels, etc.. The winner of the #yoviajoconmarta initiative, which Marta’s parents started this summer, will also receive the grand prize.